Rare Disease Clinical Trial Network
Newsletter
Welcome to the first edition our newsletter where we’re delighted to inform you about upcoming events, news and PPI opportunities!
We hope you enjoy reading it and we’re already looking forward to many exciting and inspiring events in the coming year.
PPI Opportunities
PPI Opportunities Do you have a lived experience of rare disease? Would you like to share your insights and experiences to help prioritise and shape
Training Opportunities
Training Opportunities We are running an online Rare Disease Journal Club where we dive deep into scientific literature, and early career researchers have the opportunity
RDCTN Activity
February 2025 Why Research Matters To mark World Rare Disease Day 2025 we highlight the value of research for people with a rare disease. Read
Get Involved with RD CTN?
To express an interest in getting involved or learn more about our PPI work please contact Dr Siobhan Hendrick.
Alternatively sign up to our newsletter and/or follow us on Twitter @rare_trial to make sure you hear about any of our upcoming PPI opportunities.
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