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Webinar: Launching a new guide to EDI/inclusion in PPI

Do you know that equality, diversity and inclusion matter in PPI, but aren’t sure where to start?
Have you ever wondered whether your PPI approach is genuinely inclusive, and what you could do to improve it?

You are warmly invited to a short webinar to launch a new, friendly guide to Equality, Diversity and Inclusion (EDI) in Public and Patient Involvement (PPI). This has been developed by the Rare Disease Clinical Trial Network (RDCTN) and Health Research Charities Ireland (HRCI).

Date: 25 February
Time: 12pm – 1pm
Location: Online (Zoom webinar)
Registerhttps://ucd-ie.zoom.us/webinar/register/WN_xESwYaK5R1yrArxfGaGwHw

Whether you are just starting out with PPI or looking to strengthen your approach, the guide offers clear, practical actions to help make involvement more inclusive. Co-created with people with lived experience, family members, charities and researchers, it draws on open discussion and shared learning from two dedicated workshops.

Inspired by the diverse rare disease community, the practical steps outlined in the guide apply across all areas of research. At the launch event, you’ll hear short reflections from researchers, patient partners and sector leaders, and take part in a shared conversation about how to move from intention to action in EDI and PPI.

If you’ve ever asked yourself, “Are we doing this well?” or “How could we do this better?”, this session is for you. We hope you can join us.

Inaugural European PH-ILD Forum

RDCTN and UCD School of Medicine are proud to host the inaugural PH-ILD Forum in collaboration with partners Universite Paris-Saclay and Royal Brompton Hospital.  The PH-ILD Forum is dedicated to advancing the understanding and treatment of Pulmonary Hypertension and Interstitial Lung Disease (PH-ILD) and brings together leading experts and clinicians to exchange the latest insights and best practices in both indications.

Date: 27th February

Time: 09.00 – 16.30
Location: O’Reilly Hall, UCD

Register Here 

Event Program

Seminar: Optimising Recruitment and Retention in Clinical Trials

Date: 26th May

Time: 09.00 – 16.00
Location: O’Reilly Hall, UCD

Click Here to Register 

Keynote speakers:

A full programme with speakers, talks and titles will be available shortly.

This research seminar was supported by an award made through the HRB CE Scheme 2025 (Award No. CES-2025-054) and hosted by UCD CRC and RDCTN in collaboration with HRB-TMRN, ICCCTN and ID-CTNI

Rare Disease Research Conference 2026

 

Date: 5th November

Time: 09.00 – 16.00
Location: O’Reilly Hall, UCD

Program details to follow…

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