Welcome to the Rare Disease Research Conference 2026!

An Associated Event of the Irish Presidency of the Council of the EU 2026

The third Rare Disease Research Conference will bring together world leading researchers, patient advocates, industry representatives, regulators and other stakeholders to share knowledge and experience across topics such as Orphan Medical Devices, Medicine Repurposing, Policy Driven Innovation and Regulation and Data systems. We are proud to host it as an associated event of Ireland's Presidency of the EU Council 2026.

RESEARCHER NETWORK

A dedicated space to showcase your work, find collaborators, and build your profile. All are welcome - so share this with collaborators, trainees, or anyone you supervise

PPI

Learn about our conference Public and Patient Involvement (PPI)

CLINICAL TRIALISTS

We are conducting a 2-minute anonymous survey of rare disease clinical trial experience across Ireland to help with mapping future needs. Your input is essential to building an accurate picture of what researchers need in order to conduct more trials.