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Conferences
Rare Disease Research Conference
10th April 2025, O'Reilly Hall UCD
We look forward to welcoming you to our 2025 conference! It will bring together world leading researchers, patient advocates, regulatory experts, industry representatives and other stakeholders to share knowledge and experience across topics such as rare disease research methodology, translation, European Reference Network Patient Registries and rare disease clinical trial partner perspectives.
A huge thank you to our partners at HRB-TMRN for hosting registration.
RDCTN Clinical Trials Conference 2024
The inaugural Rare Disease Clinical Trials Conference took place on World Rare Disease Day 2024.
World leading researchers and patient advocates shared experiences across topics including rare disease clinical trial methodology, patient relevant outcomes, patient perspective in clinical trial design and the journey from discovery to drug delivery. The importance of public and patient involvement and the power of collaboration were the overriding themes across the programme.
Thanks to our sponsors Pfizer, Savara, PTx, Takeda, Theravance, Roche, Boehringer Ingelheim and Kyowa Kirin for their support.
Check out our video to get a flavour of the day and join our mailing list for updates on future events!
Network Partners
