Join our network
Since the network was established in 2022 our partnerships continue to grow, allowing our expertise to expand and evolve.
Joining forces with diverse stakeholders across the rare disease community in Ireland, we are a collaboration hub that links with international expertise, and positions Ireland to be world-leading in patient access to rare disease clinical trials.
Our public and patient involvement (PPI) activities ensure that the patient voice is at the heart of everything we do leading to better quality research, and outcomes that meet the needs of the rare disease community.
Benefits of partnering with us
- Links with national and international expertise in rare disease clinical research
- Networking opportunities to build new collaborations
- Provide a platform for sharing your research activities (through our website, newsletter, social media, events)
- Capacity building and training opportunities
- Support for embedding public & patient involvement (PPI) in your research
- Support for feasibility studies and setting up a trial site
- Inclusion of your clinical trial as part of our network
How to become a partner
If you would like to become a partner with the Rare Disease CTN please email rdctn@ucd.ie and include the following in your application:
- Name and current organisational affiliation
- Rare disease(s) area of interest
- Brief summary of any relevant research you have undertaken in this area
- Why you would like to become a partner with the network
- What you would like to achieve from this partnership
- What you would contribute to the network in terms of experience or connections/board positions etc.
Network Partners
