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Conferences
Rare Disease Research Conference
10th April 2025, O'Reilly Hall UCD
Save the Date!
We are excited to announce that the Rare Disease Research Conference will take place on the 10th April 2025 in the O’Reilly Hall, UCD.
The conference will bring together world leading researchers, patient advocates, industry representatives and other stakeholders to share knowledge and lived experience across topics such as rare disease research methodology, translation, European Reference Network Patient Registries and rare disease clinical trial partner perspectives.
RDCTN Clinical Trials Conference 2024
The inaugural Rare Disease Clinical Trials Conference took place on World Rare Disease Day 2024.
World leading researchers and patient advocates shared experiences across topics including rare disease clinical trial methodology, patient relevant outcomes, patient perspective in clinical trial design and the journey from discovery to drug delivery. The importance of public and patient involvement and the power of collaboration were the overriding themes across the programme.
Thanks to our sponsors Pfizer, Savara, PTx, Takeda, Theravance, Roche, Boehringer Ingelheim and Kyowa Kirin for their support.
Check out our video to get a flavour of the day and join our mailing list for updates on future events!
Network Partners
