Rare Disease Clinical Trial Network
Newsletter
Welcome to the first edition our newsletter where we’re delighted to inform you about upcoming events, news and PPI opportunities!
We hope you enjoy reading it and we’re already looking forward to many exciting and inspiring events in the coming year.

PPI Opportunities
PPI Opportunities Do you have a lived experience of rare disease? Would you like to share your insights and experiences to help prioritise and shape

Training Opportunities
Training Opportunities We are running an online Rare Disease Journal Club where we dive deep into scientific literature, and early career researchers have the opportunity

RDCTN Activity
January 2025 Rare Disease Research Conference Abstract Submission The Rare Disease Research Conference will take place on 10th April 2025 in the O’Reilly Hall UCD.
Get Involved with RD CTN?
To express an interest in getting involved or learn more about our PPI work please contact Dr Siobhan Hendrick.
Alternatively sign up to our newsletter and/or follow us on Twitter @rare_trial to make sure you hear about any of our upcoming PPI opportunities.
NATIONAL
PARTNERS



