Tools for Public & Patient Involvement (PPI)
Wait, what was that term again? To keep things clear, we've put together a quick reference of common abbreviations. As always, if you’re unsure about anything, just ask!
This glossary was co-created with insights from the UCD Clinical Research Centre and individuals living with rare diseases. We extend our appreciation to the following entities whose contributions inspired this compilation: Health Research Charities Ireland, Health Research Board, and Prof. Rachel Crowley.
The resource was introduced at their first public engagement event in April 2023, “About us, By us…” ARUARES, The Apricot is an acronym which serves as a mental reminder/note when seeking to engage diverse communities. The members have shown that inclusivity does not always require extra resources but rather mindful consideration.
In this unique interview, we ‘flip the script’ by having Public and Patient Involvement (PPI) contributor Liz Molloy lead the conversation with researcher Prof Rachel Crowley.
Every question in this interview was co-created by PPI contributors, ensuring that the topics reflect patient and public interests and insights. Through this engaging discussion, we explore the impact of PPI on research, the value of patient and public perspectives, and the importance of inclusivity in scientific work. This video is part of our commitment to showcasing collaborative approaches in research and is available in multiple accessible formats—black and white for neurodiverse viewers, audio-only, transcript-only, and full color, all with captions.
Public and Patient Involvement (PPI) is a way of doing research that supports collaboration between people with lived experience and researchers. Here are a few of our favourite resources so you can learn more!
The Rare Disease Clinical Trial Network partners with contributors who have experience in any rare disease. They form our PPI Panel: the Rare Insights Team and Partners in Rare Research. Contributors are equal partners in research projects and improve the quality and relevance of research.
Network Partners
